Developmental Disabilities

Autism spectrum disorders; metabolic and degenerative disorders, More

AbleData
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Searchable database of 19,000 assistive technology products.

Academy for Educational Development
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AED is an independent, nonprofit organization committed to solving critical social problems in the U.S. and throughout the world through education, social marketing, research, training, policy analysis and innovative program design and management. Major areas of focus include health, education, youth development, and the environment.

Acumen Fiscal Intermediary
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Helps hundreds of individuals, guardians, and caregivers take charge of the supports they and/or their dependents receive.

Administration on Developmental Disabilities
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Ensures that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promotes independence, productivity, and integration and inclusion into the community. The ADD lives under the Administration for Children & Families, which is part of the U.S. Department of Health and Human Services.

AHRC
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Aims to offer disabled individuals day to day living that is as rich, absorbing and worthwhile as possible, with an emphasis on helping clients live up to their maximum potential in the community.

American Association of People with Disabilities
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A cross-disability member organization dedicated to ensuring economic self-sufficiency and political empowerment for Americans with disabilities. AAPD works in coalition with other disability organizations for the full implementation and enforcement of disability nondiscrimination laws.

American Association on Intellectual and Developmental Disabilities (AAIDD)
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Promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities.

American Speech-Language-Hearing Association
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The professional, scientific, and credentialing association for more than 114,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language, and hearing scientists. Its mission is to ensure that all people with speech, language, and hearing disorders have access to quality services to help them communicate more effectively.

APSE
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A membership organization formed in 1988 as the Association for Persons in Supported Employment to improve and expand integrated employment opportunities, services, and outcomes for persons experiencing disabilities.

ARCH National Respite Network and Resource Center
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Supports respite service providers and families through training, technical assistance, evaluation, and research.

Asperger Syndrome Coalition of the United States
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a national nonprofit organization committed to providing the most up-to-date and comprehensive information on Asperger Syndrome and related conditions, including Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS), High Functioning Autism (HFA), Nonverbal Learning Disability (NLD), Semantic-Pragmatic Disorder, and Hyperlexia.

Association for Persons with Severe Handicaps (TASH)
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An international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm. TASH supports the inclusion and full participation of children and adults with disabilities in all aspects of their communities as determined by personalized visions of quality of life.

Association for Science in Autism Treatment (ASAT)
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ASAT supports all scientifically sound research on the prevention, treatments and cure for autism.

Association of Higher Education And Disability (AHEAD)
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AHEAD is the premiere professional association committed to full participation of persons with disabilities in postsecondary education.

Association of University Centers on Disabilities
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A network of interdisciplinary Centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

Attention Deficit Disorder Association (ADDA)
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Provides information, resources and networking to adults with Attention Deficit/Hyperactivity Disorder and to the professionals working with them.

Attention Deficit Disorder Resources
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A national nonprofit organization that helps people with ADD or ADHD achieve their full potential through education, support and networking opportunities.

Autism Research at the National Institute of Child Health & Human Development (NICHD)
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Provides easy access to the most current information about NICHD research projects, publications, news releases, and other activities related to autism and similar disorders.

Autism Society of America
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Provides information and referral for families dealing with autism. Connects 20,000 members through a working network of over 200 chapters in nearly every state.

Autism Source
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The Autism Source Resource Database, created in 2004, is the most comprehensive database of its kind. Use it to search nationwide autism-related services and supports by location or service type.

Autism Speaks
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Seeks to change the future for all who struggle with autism spectrum disorders, and is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Beach Center on Disability
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Works to make a significant and sustainable difference in the quality of life of families and individuals affected by disability and of those who are closely involved with them.

Best Buddies
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A nonprofit 501(c)(3) organization dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.

Center for an Accessible Society
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Works to focus public attention on disability and independent living issues.

Center on Human Policy (CHP)
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CHP is a Syracuse University based policy, research, and advocacy organization involved in the national movement to insure the rights of people with disabilities.

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
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Provides general (non-clinical) information on AD/HD in children, teens, and adults. Also provides information for those who may qualify for special education and related services under the Individuals with Disabilities Education Act or Section 504 of the Rehabilitation Act solely on the basis of their AD/HD when it impairs educational performance or learning.

Children’s Hospital Boston Intellectual And Developmental Disabilities Research Center
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The mission is to focus research on issues of relevance and importance to intellectual and developmental disabilities.

Civitan International Research Center (CIRC), University of Alabama at Birmingham
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CIRC is an interdisciplinary center dedicated to improving lives through brain research and the prevention and treatment of developmental disabilities.

Community Living Exchange Collaborative
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The Exchange is a vital hub of information sharing, training and technical assistance for more than 180 recipients of Systems Change Grants for Community Living in all 50 states, two territories and the District of Columbia. Through a variety of activities, The Exchange is breaking down long-standing barriers that often prevent news of community living innovations and ideas from traveling from one organization, city or state to the next.

Cornucopia of Disability Information (CODI)
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Contains full text articles, directories, and guides to disability information, and includes links to other relevant disability-related sites.

Council for Exceptional Children
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The CEC is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities and the gifted.

Council on Quality and Leadership
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The Council is an international organization at the forefront of the movement to create opportunities for people with disabilities, by directing efforts toward promoting quality improvement in services and supports.

Developmental Disabilities Resource Center
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Provides leading-edge services that create opportunities for people with developmental disabilities and their families to participate fully in the community. Family Services includes early intervention, family support and children's Medicaid waivers.

Disability Access Information and Support
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An important resource to the higher education community, providing a menu or services for those concerned with disability and access to higher education.

Disability is Natural
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Encourages new ways of thinking about disability to help create a society in which all people are valued and included.

Disability Rights Education and Defense Fund, Inc.
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DREDF is a national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities.

Disability.gov
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Government resources, services and information for people with disabilities.

DisabledTravelers.com
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A resource dedicated to accessible travel information that provides information on businesses from around the world that specialize in disability travel.

Easter Seals Disability Services
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Non-profit, community-based health agency dedicated to helping children and adults with disabilities attain greater independence.

Elwyn
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Elwyn is a non-profit human services organization for people with special challenges. It serves children and adults with developmental, physical and emotional disabilities, as well as those with disadvantages.

Eunice Kennedy Shriver Center, UMass Medical School
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Promotes understanding of neurological and behavioral development, with special emphasis on intellectual and developmental disabilities.

Family Village
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Hosts a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

Family Voices
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A national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals.

Faye J. Lindner Center for Autism
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Helps families obtain comprehensive assessments, support, and information on the latest research. Also provides school consultation services and is available to assist schools in program development for students with autism.

Federal Resource Center for Special Education (FRC)
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The FRC is a coordinating center for special education technical assistance providers.

Federation for Children with Special Needs
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Provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.

Fetal Alcohol Disorders Society
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Provides research, information, support and communications related to Fetal Alcohol Disorders.

Fetal Alcohol Syndrome Family Resource Institute
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A non-profit organization working to identify, understand and care for individuals disabled by pre-natal alcohol exposure and their families and to prevent future generations from having to live with this disability.

Gift from Within
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A nonprofit organization dedicated to those who suffer post-traumatic stress disorder (PTSD), those at risk for PTSD, and those who care for traumatized individuals.

Gimp on the Go
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An online travel site addressed to the needs of the disabled traveler.

Global and Regional Asperger Syndrome Partnership
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A group committed to raising awareness about this condition, while including those diagnosed with autism, Asperger syndrome and pervasive developmental disorder on its advisory board and board of directors.

Head Start
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Head Start serves the child development needs of preschool children (birth through age 5) and their low-income families.

Imagine
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Dedicated to supporting people who experience disabilities and exhibit difficult behaviors. The practice is based on the simple idea that difficult behaviors result from unmet needs.

Independent Living Institute
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A policy development center specializing in consumer-driven policies for disabled peoples' self-determination, self-respect and dignity.

Independent Living Research Utilization (ILRU)
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Information, training, research, and technical assistance in independent living.

Independent Living USA
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A news, information and advocacy site for disabled persons seeking to live independently. Based in NY City, the site includes a Directory of Independent Living Centers, and contact a Center in that State. The Directory has ILCs listed by States and countries.

Indiana Institute on Disability and Community, Indiana University
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The mission of the Indiana Institute on Disability and Community is to work with communities to welcome, value, and support the meaningful participation of people of all ages and abilities through research, education, and service.

Institute on Community Integration
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Conducts research, training, technical assistance, and dissemination to improve the lives of persons with disabilities and their families.

International Dyslexia Association (IDA)
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IDA is a nonprofit organization dedicated to helping individuals with dyslexia, their families, and the communities that support them.

International Rett Syndrome Association
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A partnership of parents and professionals united in purpose to bring greater understanding of Rett syndrome. Membership is represented by all 50 states and 65 foreign countries. Members include parents, relatives, physicians, therapists, researchers and friends, all interested in providing a better future for girls with Rett syndrome.

Internet Special Education Resources (ISER)
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A nationwide directory of professionals who serve the learning disabilities and special education communities. Helps parents and caregivers find local special education professionals to help with learning disabilities and attention deficit disorder assessment, therapy, advocacy, and other special needs.

Job Accommodation Network (JAN)
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Works to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, entrepreneurship, and related subjects.

Job Accommodation Network (JAN)
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JAN is a consulting service that provides information about job accommodations and the employability of people with disabilities.

Kansas Intellectual and Developmental Disabilities Research Center
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Pioneers advances in our understanding of the many biological and behavioral processes underlying human development and the conditions that occur when these processes go awry leading to intellectual and developmental disabilities.

Learning Disabilities Association of America
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Provides support to people with learning disabilities, their parents, teachers and other professionals. At the national, state and local levels, LDA provides cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.

Learning Disabilities Online
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A support site for parents, teachers and other professionals dealing with the challenges of learning disabilities that include Dyslexia, Dyscalculia, Dysgraphia and those affecting Auditory and Visual Processing.

Little City Foundation
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Helps children and adults with intellectual and developmental disabilities and other, emotional and/or behavioral challenges live meaningful and happy lives with dignity and respect.

Museum of disABILITY History
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Dedicated to the collection, preservation and display of artifacts pertaining to the history of people with disabilities. Located in Buffalo, New York, and on the World Wide Web, the museum offers educational exhibits and activities that expand community awareness. The Museum of disability History is a project of People Inc.

National Association for the Education of Young Children (NAEYC)
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NAEYC is dedicated to improving the well-being of all young children, with particular focus on the quality of educational and developmental services for all children birth through age 8.

National Association of Councils on Developmental Disabilities
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Provides support and assistance to member Councils in order to promote a consumer and family centered system of services and supports for individuals with developmental disabilities.

National Association of Private Special Education Centers (NAPSEC)
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A nonprofit association whose mission is to represent private special education centers and their leaders.

National Association on Alcohol, Drugs and Disability
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Promotes awareness and education about substance abuse among people with co-existing disabilities. The mission of NAADD is to create public awareness of issues related to alcoholism, drug addiction, and substance abuse faced by persons with other co-existing disabilities, and to provide a peer approach to enhance access to services, information, education and prevention through the collaborative efforts of interested individuals and organizations nationwide.

National Ataxia Foundation
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Dedicated to improving the lives of persons affected by ataxia through support, education, and research, the Foundation supports research in dominant ataxia (including SCA’s), recessive ataxia (including Friedreich’s), and sporadic ataxia. In addition, the Foundation has developed an extensive library of NAF brochures, fact sheets, books, and other educational material relating to ataxia

National Center for Learning Disabilities
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Increases public awareness and understanding of learning disabilities, conducts educational programs and services that promote research-based knowledge, and provides national leadership in shaping public policy. NCLD provides solutions that help people with LD participate fully in society.

National Center on Birth Defects and Developmental Disabilities
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A web site of the Center for Disease Control (CDC) that provides information on research relevant to those dealing with developmental disabilities.

National Clearinghouse for Professions in Special Education (NCPSE)
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NCPSE is committed to enhancing the nation’s capacity to recruit, prepare, and retain well qualified diverse educators.

National Council on Disability
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An independent federal agency making recommendations to the President and Congress on issues affecting Americans with disabilities. NCD is composed of 15 members appointed by the President and confirmed by the U.S. Senate.

National Dissemination Center for Children with Disabilities (NICHCY)
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Provides information on disabilities in children and youth, programs and services for infants, children, and youth with disabilities, IDEA, special education law, No Child Left Behind, general education law and research-based information on effective practices for children with disabilities.

National Down Syndrome Society
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Works to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

National Early Childhood Technical Assistance Center (NECTAC)
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The NECTAC mission is to strengthen service systems to ensure that children with disabilities (birth through five) and their families receive and benefit from high quality, culturally appropriate, and family-centered supports and services.

National Institute of Child Health & Human Development (NICHD)
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NICHD seeks to assure that every individual is born healthy, is born wanted, and has the opportunity to fulfill his or her potential.

National Institute of Mental Health (NIMH) Autism Spectrum Disorders (ASD) Research
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NIMH provides information that summarizes the current research on the causes, diagnosis, prevention and treatment of autism spectrum disorders.

National Institute on Deafness and Other Communication Disorders
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Conducts and supports biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function.

National Institute on Disability and Rehabilitation Research (NIDRR)
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NIDRR provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities.

National Organization for Rare Disorders (NORD)
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NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research and service.

National Organization on Disability (NOD)
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Promotes full and equal participation of America’s 54 million men, women, and children with disabilities in all aspects of life.

National Rehabilitation Information Center (NARIC)
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NARIC is a library and information center focusing on disability and rehabilitation research.

Neurodevelopmental Disorders Research Center, University of North Carolina
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The mission of the UNC NDRC is to support and promote multidisciplinary research and research training on the origination and development and treatment/prevention of neurodevelopmental disorders.

Online Asperger Syndrome Information & Support (OASIS)
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A web site providing information, links, papers and articles, educational resources and mutual support to families of children diagnosed with Asperger Syndrome and related disorders, educators who teach children with AS, professionals working with individuals diagnosed with AS, and individuals with AS who are seeking support.

Organization for Autism Research (OAR)
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Led by parents, grandparents and relatives of children and adults with autism, OAR uses applied science to answer questions for the community. OAR's Web site offers free online programs that can be downloaded for parents and professionals.

PACER Center
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Expands opportunities and enhances the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents. Provides assistance to individual families, workshops, materials for parents and professionals, and leadership in securing a free and appropriate public education for all children

Paraprofessional Health Care Institute
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Works to strengthen the direct-care workforce within our nation’s long-term care system through developing innovative approaches to recruitment, training, and supervision; client-centered caregiving practices; and effective public policy.

Parent Training and Information Centers and Community Parent Resource Centers
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An online directory to regional Parent Centers that serve families of children and young adults from birth to age 22 with all disabilities: physical, cognitive, emotional, and learning.

Parents Helping Parents
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Helps children with special needs receive the resources, love, hope, respect, health care, education, and other services they need to reach their full potential by providing them with strong families, dedicated professionals, and responsive systems to serve them.

Pathways Awareness Foundation
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A national non-profit organization dedicated to raising awareness about the benefit of early detection and early therapy for children with physical movement differences.

Peak Parent Center
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Works to provide training, information and technical assistance to equip families of children birth through twenty-six including all disability conditions with strategies to advocate successfully for their children.

Pediatric Development and Behavior
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An independent web site created to promote better care and outcomes for children and families affected by developmental, learning, and behavioral problems by providing access to clinically relevant information and educational material for physicians, fellows, resident physicians, and students. The site may also be of interest to psychologists, nurses, nurse practitioners, social workers, therapists, educators, and parents.

Prader-Willi Syndrome Association (PWSA)
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PWSA is an organization of families and professional working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome.

Regional Resource and Federal Centers (RRFC) Network
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Assists state education agencies in the systemic improvement of education programs, practices, and policies that affect children and youth with disabilities. These centers offer consultation, information services, technical assistance, training, and product development.

Rehabilitation Research and Training Center on Aging with Developmental Disabilities
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A web site designed to provide information on the latest research, model programs, and policy issues pertaining to the population of aging people with developmental disabilities.

Resources for Supporting Community Living Toolkit
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This tool kit was developed at the request of volunteers, advocates, self-advocates, and professionals concerned that the remarkable progress made towards the inclusion of people with cognitive, intellectual and developmental disabilities (our constituents) into the fabric and mainstream of community life in America was at risk.

Sibling Support Project
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A national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.

Social Security Administration
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Official website of the US Social Security Administration.

Special Education Resources on the Internet (SERI)
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SERI is a collection of Internet accessible information resources of interest to those involved in the fields related to Special Education.

Spina Bifida Association of America
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Promotes the prevention of spina bifida and enhances the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community. It serves as the national representative of almost 60 chapters.

TASH
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TASH is an international association of people with disabilities, their family members, and other advocates working together to create change and build capacity so that all people, no matter their perceived level of disability, are included in all aspects of society.

Therapeutic Resources
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Provides easy to use and effective educational products to assist in the development of life skills and personal development. These resources help to asisst the people involved in the therapeutic care of others.

Through the Looking Glass
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TLG is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community-based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California.

Tourette Syndrome Plus
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On this site, patients, their families, teachers, and clinicians can learn about Tourette's Syndrome, Attention Deficit Hyperactivity Disorder, Obsessive-Compulsive Disorder, Executive Dysfunction, juvenile Bipolar Disorder, autism spectrum disorders, 'rage attacks,' and much more. Site also includes major sections on behavioral issues and classroom tips for parents and teachers.

Trace Research & Development Center
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Part of the College of Engineering, University of Wisconsin-Madison. Founded in 1971, Trace has been a pioneer in the field of technology and disability. Its mission is to prevent the barriers and capitalize on the opportunities presented by current and emerging information and telecommunication technologies, in order to create a world that is as accessible and usable as possible for as many people as possible.

UCLA IDDRC
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The mission of the Center is to elucidate the molecular, cellular and behavioral mechanisms underlying the pathogenesis of developmental dysfunctions causing intellectual and developmental disabilities and to translate this fundamental knowledge into novel diagnostic, preventive and therapeutic approaches which can be ultimately applied in clinical care.

United States Department of Health and Human Services (HHS) Office on Disability
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Oversees the implementation and coordination of disability programs, policies and special initiatives pertaining to the over 54 million persons with disabilities in the United States.

University of Montana Rural Institute: Transitions Project
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Works toexpand the model of transition planning created through Project WISER to include self-employment as a career exploration strategy and a post-school employment option for students with ongoing support needs, and to increase the accessing of Workforce Investment resources as part of transition planning. Linkages will be developed and piloted in six Montana communities.

US Department of Labor Office of Disability Employment Policy (ODEP)
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ODEP provides national leadership by developing and influencing disability-related employment policy as well as practice affecting the employment of people with disabilities.

Vanderbilt Kennedy Center for Research on Human Development
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The mission of the Vanderbilt Kennedy Center for Research on Human Development is to improve the quality of life of persons with disorders of thinking, learning, perception, communication, mood and emotion caused by disruption of typical development.

VSA Arts
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An international nonprofit organization that seeks to create a society where all people with disbilities learn through, participate in and enjoy the arts.

Waisman Center, University of Wisconsin
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The Waisman Center’s mission is to advance knowledge about human development, developmental disabilities, and neurodegenerative diseases.

World Institute on Disability
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Dedicated to promoting independence and societal inclusion of people with disabilities. Includes publications, programs and events.

Wrightslaw
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The Wrightslaw mission is to provide parents, advocates, educators, and attorneys with accurate, up-to-date information about special education law and advocacy so they can be effective catalysts.

Yale Developmental Disabilities Clinic
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Offers comprehensive, multidisciplinary evaluations for children with social disabilities, usually focusing on the issues of diagnosis and intervention.

Zero to Three
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Offers a comprehensive interactive resource for parents and early childhood education professional on healthy development of children ages zero to three.

 
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